Michael’s Story began from the humbling journey of parents with a child born with a life-threatening heart defect. Our heart’s beat stronger, when we help each other.” Which is now growing and looking for more volunteers and sponsors. Michael's story inspired the birth of Brave little Hearts for Michael and Friends. In our storm we want to shine our light bright, so others can see their way too. Being a giving family, they also wanted to help other families reach their fullest potential. Through hard work and sacrifice they found a way. Yes, they were fortunate to have family support but they too had a huge learning curve when it came to Michael’s care. Michael’s father who traveled weekly cross state lines to work. Therefore, she resigned from her career and found ways to gain knowledge and understanding on how to be the best advocate for Michael. As a mother, she was determined to provide the best opportunity regardless of his prognosis. The CHD journey is a hardship on the entire family. Michael HLHS was Critical therefore the CICU was his home the first year of his life. Treatments and medications help manage the symptoms. The cause is unknown and there is no cure. The left side of the heart was underdeveloped. Brave little Hearts for Michael and Friends was born through the journey of a mother with a child born with a heart defect.
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